We need you because we are trying to build a TimeBank as a way help people to get in touch and help each other with inclusive research.
People might come forward and:
- offer their opinions
- help with writing grant applications
- help with the research
- other things
Importantly, if you put something in the TimeBank, you can take something back in return.
We welcome your views if you are involved in inclusive or ‘co-produced’ research as a:
- researcher working with people with disabilities
- disabled person’s organization
We also welcome your views if you are disabled and want to take part in inclusive research.
We need to find out what type of TimeBank system would help people to take part and enjoy using the TimeBank.
Maybe the TimeBank should be a website, or an app, or something else.
We cannot find this out by ourselves.
We want you to think about how you get in touch and work with other people to do inclusive research.
We need you to tell us about:
- Problems or barriers you have faced
- Your ideas about solutions or tools
We want you to tell us what design features would make the TimeBank easy to use.
We will know the TimeBank is easy to use if:
- Anyone can use it
- It is fun to use
- People use it again and again
Feel free to share your ideas and comments with us in our Ideas Bank…
We would value your feedback on any and all aspects about the PRICE project (see ‘Why do we need you?’ page for more).
On this page, you can click on the ‘comment’ button below to leave your ideas, suggestions and even criticisms about the use of TimeBanking for inclusive research. Each comment that is left will help build up our ‘ideas bank’ and inform our research decisions.
Thank you for engaging with PRICE!
Update after the Twitter chat:
Please keep your responses coming, using the hashtag #pricestudy if you are happy for us to use your tweet as data (more on this below). If you don’t use twitter, we also have an Ideas Bank where we would welcome your thoughts.
Original information about Twitter chat:
Welcome to the Twitter chat about TimeBanking for inclusive research with people with learning disabilities. A Twitter chat is chance to come up with ideas together on Twitter. A TimeBank is a way of matching people who have something to offer with people who want something. Inclusive research with people with learning disabilities is research that matters to people with learning disabilities. It includes and respects them. We are the PRICE project. PRICE stands for Participation and Responsible Innovation in Co-design for Exchange. This Twitter chat is acting as a focus group for the PRICE project.
In the project we are thinking of new ways to use the internet to work together and make sharing research skills and time easier. When we know what may work well we will apply for more funding to carry on our work. We need to find out more about how TimeBanks work. We can then understand how to create a good TimeBank. We think a TimeBank is good if many people have had a say in it and if it is designed by people who use it. The project is a collaboration between University of Southampton and Barod: for information about who we are, please see our ‘why are we involved’ page.
We are interested in what you have to say but it’s up to you if you want to take part. You might join in because you could use the TimeBank in the future and you will have helped make it. You can join in and change your mind later. You don’t have to say why. We will think about what you told us when we design the TimeBank. We don’t need your personal details and we can’t think of any bad or risky things for you in taking part. Do remember though that Twitter is public.
If you use the hashtag pricestudy (#pricestudy) we will use your tweet as data. By using the hashtag you are telling us that you have read this information and understand that you are taking part in the study – you are giving informed consent. We will treat your tweet as data. During the Twitter chat, we will tweet to remind you of this from time-to-time. We will use our website to tell you what we have done. We will thank people in our reports. We do not need to refer to you by your real name unless you want us to.
We have ethics approval to do this research (number 12660). If you are unhappy with anything about your involvement in the study you can talk our Head of Research at Southampton University by email firstname.lastname@example.org or phone 02380 595058.
In the Twitter chat, we will ask three questions:
We got loads of great ideas from the people who came to our focus group in Bristol. A group of people who do inclusive research made our own low tech TimeBank there where we wrote what we can offer on green cards and what we need on red cards. We used wool to connect our offers with our needs. When we thought about making this into a web-based version we talked about communication, accessibility and security. People were concerned with fairness, i.e. that the website must be accessible, no one should be excluded, and everyone involved should give and take. People were also concerned about being safe online saying they would need new skills, information about each other, video guidance and examples, perhaps meeting people first and having a contract. Some said the website needs to work with assistive technology. Our technical developer has been working with these and other ideas in developing our early prototype being tested now.
Our Twitter chat about the TimeBank involved around 40 people. This added to what we learned from the face-to-face focus group. On the themes of trust, accessibility and communication worries were expressed, and helpfully suggestions for reducing worries. These included having clear parameters and transparent working and organising regional meet-ups. There was the idea of a developer ‘hack day’ to help build or fine-tune the software; and importantly, enabling clear user control of design decisions at the outset to build confidence. We got lot of help on the website functions people would want too (entry-level information, use of social media for community building to fit with the TimeBanking ethos, user profiles, and even badges leading to us discussing the idea of a gamification element). We are grateful to everyone for their input.