PRICE is a project put together by a team of people from University of Southampton and Barod Community Interest Company. PRICE is a pilot project funded by the Web Science Institute.
We are exploring whether an online TimeBank can solve some problems for people doing inclusive research with people with learning disabilities.
matters to people with learning disabilities
involves people with learning disabilities and academics working together
respects everyone involved
There are some practical problems with inclusive research:
There isn’t an easy way for people to meet each other and decide to work together
People in an inclusive research team often don’t get the same pay or status
There is often no money to pay for parts of the research, like writing grant applications
A TimeBank is a way of matching people who have something to offer with people who want something. We think an online TimeBank might solve some of these problems. To explore this idea we have been busy:
doing a lot of reading and thinking
listening to other inclusive researchers
listening to people who are good at making websites easy for everyone to use
developing a prototype Timebank to test our ideas and get your feedback.
Please take a look at our online prototype (links to new window). This is a draft site to explore the potential of an inclusive research timebank. Feel free to offer feedback as we want to develop it further.
Melanie Nind: I am involved in this project because I am concerned about inclusive research. I have tried to do research inclusively and talked with other people too as part of a previous study. I have a good sense of the problems and when Barod people talked about TimeBanks I could immediately see the potential. I am interested to see if people, technology and ideas can come together to make real progress with some thorny challenges.
Sarah Parsons: I am part of this project because I am very interested in how we might be able to solve the problem of involving people who do not work at universities in research projects. I have worked with people with disabilities in previous research projects. The issue about how to best support their participation always – quite rightly – comes up. I have talked to other researchers about this too and know that they have had the same discussions. I’m really interested in hearing from others about how we can design and develop an online TimeBank that might help to solve some of the problems.
Andrew Power: I am interested in researching how people with disabilities experience their everyday lives and policy that tries to bring about change on the ground. It is often difficult to find or make contact with people to participate in research or to check their views on a particular issue. I am very aware that people often give up their own time to take part in research. I am hopeful that a TimeBank would encourage people to more freely participate and get something back in return.
Clare Hooper: I am part of PRICE because I am interested in inclusive computer interfaces, in other words making websites and other software usable by everyone. I am also interested in understanding how technologies like the Web can improve people’s lives, by letting us build things like online TimeBanks. It would be impossible to do this well without people from a range of backgrounds and disciplines working together: PRICE brings those people together.
Barod Community Interest Company is a workers cooperative based in Wales. We grew out of the People First movement.
We believe in making public life inclusive for everyone. This includes making research inclusive.
We think it is wrong to say people are equal but then pay them differently or treat them differently.
We think a TimeBank may be a good way to put this right.
We are really happy that Southampton University liked the idea and wanted to work with us.
We would value your feedback on any and all aspects about the PRICE project (see ‘Why do we need you?’ page for more).
On this page, you can click on the ‘comment’ button below to leave your ideas, suggestions and even criticisms about the use of TimeBanking for inclusive research. Each comment that is left will help build up our ‘ideas bank’ and inform our research decisions.
Please keep your responses coming, using the hashtag #pricestudy if you are happy for us to use your tweet as data (more on this below). If you don’t use twitter, we also have an Ideas Bank where we would welcome your thoughts.
Original information about Twitter chat:
Welcome to the Twitter chat about TimeBanking for inclusive research with people with learning disabilities. A Twitter chat is chance to come up with ideas together on Twitter. A TimeBank is a way of matching people who have something to offer with people who want something. Inclusive research with people with learning disabilities is research that matters to people with learning disabilities. It includes and respects them. We are the PRICE project. PRICE stands for Participation and Responsible Innovation in Co-design for Exchange. This Twitter chat is acting as a focus group for the PRICE project.
In the project we are thinking of new ways to use the internet to work together and make sharing research skills and time easier. When we know what may work well we will apply for more funding to carry on our work. We need to find out more about how TimeBanks work. We can then understand how to create a good TimeBank. We think a TimeBank is good if many people have had a say in it and if it is designed by people who use it. The project is a collaboration between University of Southampton and Barod: for information about who we are, please see our ‘why are we involved’ page.
We are interested in what you have to say but it’s up to you if you want to take part. You might join in because you could use the TimeBank in the future and you will have helped make it. You can join in and change your mind later. You don’t have to say why. We will think about what you told us when we design the TimeBank. We don’t need your personal details and we can’t think of any bad or risky things for you in taking part. Do remember though that Twitter is public.
If you use the hashtag pricestudy (#pricestudy) we will use your tweet as data. By using the hashtag you are telling us that you have read this information and understand that you are taking part in the study – you are giving informed consent. We will treat your tweet as data. During the Twitter chat, we will tweet to remind you of this from time-to-time. We will use our website to tell you what we have done. We will thank people in our reports. We do not need to refer to you by your real name unless you want us to.
We have ethics approval to do this research (number 12660). If you are unhappy with anything about your involvement in the study you can talk our Head of Research at Southampton University by email firstname.lastname@example.org or phone 02380 595058.
We got loads of great ideas from the people who came to our focus group in Bristol. A group of people who do inclusive research made our own low tech TimeBank there where we wrote what we can offer on green cards and what we need on red cards. We used wool to connect our offers with our needs. When we thought about making this into a web-based version we talked about communication, accessibility and security. People were concerned with fairness, i.e. that the website must be accessible, no one should be excluded, and everyone involved should give and take. People were also concerned about being safe online saying they would need new skills, information about each other, video guidance and examples, perhaps meeting people first and having a contract. Some said the website needs to work with assistive technology. Our technical developer has been working with these and other ideas in developing our early prototype being tested now.
Our Twitter chat about the TimeBank involved around 40 people. This added to what we learned from the face-to-face focus group. On the themes of trust, accessibility and communication worries were expressed, and helpfully suggestions for reducing worries. These included having clear parameters and transparent working and organising regional meet-ups. There was the idea of a developer ‘hack day’ to help build or fine-tune the software; and importantly, enabling clear user control of design decisions at the outset to build confidence. We got lot of help on the website functions people would want too (entry-level information, use of social media for community building to fit with the TimeBanking ethos, user profiles, and even badges leading to us discussing the idea of a gamification element). We are grateful to everyone for their input.